On upcoming hearing…

My disability hearing is coming up on August 14, I will simply state the truth..

That I am disabled and unable to hold down a decent job.  My anxiety rules my days although I do sleep at night.

I tried to work outside my field and did well in the training part of the job but when I was out of training I found it very hard to remember all that I needed to do and was severely stressed out each day I went to work.  My psychiatrist agrees and recommends that I don’t work.  I do help my frail mother at times and go see my dad who had a stroke and is paralyzed at a care facility.  But to hold down a job I just don’t feel capable due to the Schizoaffective Disorder, Schizophrenia plus depression.

I am not worried, God has my back but it is still stressful to go through it all and show up in front of a judge.

Pax

Victoria

Quality reading and experiencing psychotic symptoms again

I have been doing a lot of reading lately and it is wonderful to be reading some of the greatest classics and uplifting books out there!  I am reading the autobiography of Mahatma Gandhi, The Book of Joy by the Dali Lama and Archbishop Tutu, the Portable Thoreau and the Imitation of Mary.  Most of what I read really resonates with my spirit and helps me to understand myself better.

For instance, on sadness, the Book of Joy offers much insight into how it can really help us be better people causing us to be more compassionate towards others.  I have deep sadness right now because of what has happened with my father. He will never be the same, yet continues to live which I am grateful to God for.  But his bane existence wipes me out almost every time I see him.  He often doesn’t make much sense although at times he makes perfect sense.  I take what I can and leave the rest to God to sort out.

On another note, I am slightly psychotic right now again.  I am not sure how this has happened and I have plans to call my pdoc in the morning and I don’t know how I feel about this.  I was doing so well with no psychotic symptoms for years and now that I am again I am just hopeful my pdoc will know what to do.

I am experiencing thought insertion, no voices this time.  It is amazing that I can read right now although I am only absorbing about 25% of what I read and retaining even less than that.  But I have had a virus with much free time on my hands so I read anyway and do my best to not obsess over these unwanted thoughts.

After this gets settled, I plan to continue the job search for a low stress job that will allow me to continue to receive permanent disability.  I had a dream last night that I had a job at a local diner as a waitress which I did for many years before getting my degree.  Perhaps I will do that.  Who knows what the future holds.  Not I, nor do I want to know the future.

Well that is all for now.  It is hard to focus my thoughts so I hope this post made sense.

Pax

Victoria

Not doing well…

 

Since getting fired I have been trying to keep a chin up and accept my limitations to be able to work and have tirelessly tried to deal with this anxiety.  I await disability to view my situation and it helps that I got fired, but it still be another half year prior to settling.

I smoke and chew nicotine lozenges endlessly throughout the day.  But I am managing my house and cooking for my mom and son and me.  I shower but unwillingly.

I suppose I should call my doctor but when he tried to change my anti-anxiety medication I had terrible side effects and had to discontinue its use.  Afraid to try anything else.

I am not suicidal which is good because sometimes it does get to that but I want to live and just struggle to get through each day.

But I will not give up!

Pax

Victoria

Why is it that we define ourselves by our work or lack of?

Why is this I ponder?  I am an able bodied woman in her forties who can’t work due to my condition schizoaffective disorder.  People look at me and don’t understand why I don’t work but I find most people are polite and don’t get into it and I am thankful for that.  But there is always that awkward silence when being introduced, when the question comes up, what do you do?  Right now I am able to answer that I am a stay at home mom who helps her elderly parents.  I don’t mention my vast education that is unused at this point in my life, nor my former work as a therapist intern which I worked at for 4 years after earning my Master’s degree in psychology.

That seems so long ago but it was only last year.  I have learned much in the time I have been off.  I have learned to be more present for my family and friends and that I love to entertain.  Getting the house and lately the gardens in order gives me a sense of purpose and excitement for the upcoming event.  Gardening has become my new passion and the class I am taking currently helps me to do it right.  I have some days when I spend the whole day looking after the yard and my gardens and at the end of the day I am tired but satisfied to play with the earth.  Spring right now is beautiful with all the flowers and greenery surrounding us where we live in California despite the drought.

My dogs also are my constant companions at other times of the day.  They lay next to my feet and are much happier now that I don’t work.  House cleaning hasn’t been as much as a painful chore and I like the days when I get to cross off my google keep list another chore done!

I go to my AA meetings too and get inspiration to keep going without using drugs and alcohol to deal with stress although I don’t have much these days except now and then.  I read and watch my shows throughout the day and even joined a book club which is stimulating for the mind.  Right now I am reading Stephen Hawking: the unfettered mind.  In all his disabilities he kept going and really left his imprint on this world.  I am really enjoying reading about his life although the science is over my head for the most part.

So back to my original question.  Why do we feel defined by working or not?  I don’t anymore but others may not feel the same way.  The only reason now why I would try to work again is because we really need the money but at what cost would that take place if I end up in the hospital again with another hefty bill?  I am going to try to write a book like Stephen Hawking did and solve all my financial woes although right now I am actually doing ok with the finances but that is because I am still receiving disability.  I am going to write a book about fulfillment outside of working I think.  Something to do anyway with some of the free time I have left!

Some of the brief benefits are easy to notice as I have shared on here.

Have a great day everyone, I am going to start my book and see where it takes me!  If anyone has any ideas on how to get published will you let me know?  I self published through Create Space and didn’t sell very many copies.  I would like to reach more readers not just through Amazon.

Pax

Victoria