Welcome to my blog! Please feel free to read this short bio if you are new, return readers can scroll down to new post, thanks.
My name is Victoria and I suffer from Schizoaffective Disorder (SA), which is basically Schizophrenia plus depression; this blog journals my progress from fall 2013 to now although I was diagnosed in 2008. I have experienced both the positive (hallucinations and delusions) and negative symptoms (lack of motivation, flat affect. social difficulties) of Schizophrenia and while the positive symptoms have been under control with Risperdal, since being diagnosed with Schizoaffective Disorder by UCLA in 2008, I have still suffered from the negative symptoms until recently when my psychiatrist added Latuda. Post diagnosis I received my Masters Degree in Psychology and used to work in the mental health field until stress caused me to go on permanent disability in September 2015.
I started this blog in fall 2013 which journals my personal recovery from Schizophrenia. The earliest entries chart my psychotic period 2006/2007 with much in between and my current focus is managing the negative symptoms of Schizophrenia. I welcome all feedback and enjoy meeting new people through this blog and other articles I have written. I have also written a book which is available on Amazon by me, Victoria Marie Alonso- My personal recovery from Schizophrenia, which is for loved ones or those afflicted with this disorder. This blog has been viewed over 8000 times and by over 50 countries! Bienvenidos a todos! Welcome to all!
Please feel free to email me to share your story or that of a loved one at:email@example.com
Other mental health providers or researchers are welcome to ask any questions, as well.
Well the days are strange these days. Some days I get a lot done and others I kind of bumble around not accomplishing much. But that’s ok because I can’t have perfect days every day, that would be unrealistic.
These days I am very grounded in the reality of my situation. I can’t work, not even part time. My career is toast and although I am sad about that because I actually do enjoy working it is ok because my life is very full with family, friends and all my readers some of whom have become good friends.
I take great pride in the upkeep of my house and actually enjoy days when I get to stay home and make it shine. I have also joined a book club for mental stimulation. Right now we are reading Thoreau which was my pick so I am in heaven; I just love his writing. I go to Church every week and practice my faith every day praying for all my loved ones and right now am praying for all who read this blog for relief such as I have found from this dastard disorder which does still rob my joy at times when I let it which sometimes is more often than I like to admit.
But I have hope, hope that while I live and breathe I can enjoy life and look forward to life eternal when I will no longer suffer from SA. If I can give just one person hope, that is enough. Coming to a place of acceptance is the greatest accomplishment and I hope that all of you can find the same. Your life is not over because you have this disorder, different yes, but not over.
The best thing I have done is to find a psychiatrist who I trust with everything to get the medication cocktail just right and also finding a therapist who I trust as well to work through some of the facets of this disorder that I don’t discuss with my pdoc like how to live life with this disorder. I no longer see this therapist but will forever hold onto her comforting sessions when I got to be myself and have a good sounding board to check in my sometimes still strange ideas and hear solutions which I couldn’t think of by myself. Exercise is also key to my well being. I walk sometimes 7 miles a day and enjoy this cheap hobby very much which brings me great relief of the depression that I still face at times. Eating well is also vital to my well being. I probably eat healthier now than ever before and I have lost 30 pounds doing so with the help of Weight Watchers to learn how to eat smart and be more active.
These are the main ways I stay sane. Like I said not every day is perfect but the days that are are awesome.
Readers, write in and share some of your secrets for dealing with this disorder!